Dedicated to our memory of Christopher Finnes
who inspired so many in his short but extraordinary life
Empowering Voices: A Community-Directed Panel Discussion on Epilepsy in Autism
Jun 2, 2023 02:30 PMT
As an organization committed to serving individuals with autism, we understand the unique challenges and uncertainties that come with a diagnosis of epilepsy.
This online panel discussion aims to bridge the gap between the autism community and epilepsy researchers, neurologists and epileptologists, ensuring that our voices are heard and our experiences shape the research agenda. We believe that collaboration and shared insights are crucial in driving meaningful advancements in epilepsy research and treatments for individuals with ASD.
During this interactive online panel discussion, parents, caregivers, and individuals with lived experiences will have the opportunity to share their case stories, challenges, and perspectives directly with leading epilepsy researchers and physicians. Together, we will discuss current treatments, explore unanswered questions, and identify research priorities that truly reflect our community’s needs.
This panel discussion builds on the work that we started at our research roundtable on seizures at Synchrony 2022. It will serve as a springboard to develop a research grant proposal for funding by the BRAIN Foundation. The research updates and results/publications will be shared back with the community.
PARTICIPATING CLINICIANS AND RESEARCHERS
RICHARD FRYE, MD PhD
Phoenix Children’s Hospital & University of Arizona
SAMUEL PLEASURE, MD PhD
University of California San Francisco
JEFFREY D. LEWINE, PhD
University of New Mexico & MIND Research Network
JOHN GAITANIS MD
Whether you have firsthand experience with epilepsy, are a passionate advocate, or simply want to listen to the dialogue, we invite you to join us for this important discussion. Together, we can drive positive change and improve the lives of our loved ones.
Online Event – Jun 2, 2023 02:30 PM Pacific Time (US and Canada)
Register and be part of this transformative event.
Your voice matters, and together, we can make a real impact!
Your voice matters – help us shape the future of research on epilepsy in autism!
Whether you are able to attend the live event or not, do let us know your thoughts on what topics of research or areas of need ought to be prioritized to satisfactorily treat epilepsy in autism by filling in this form. (please note that in order to attend the online event you would still need to register via the link above)
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