BRAIN Foundation’s clinical initiatives focus on translating research to evidence-based treatments for the core disabilities of autism and co-morbid medical conditions. We are committed to help establish a more robust standard of care for medical co-morbidities in ASD across the board. This includes:
- Improved guidelines for ongoing routine care
- Proactive monitoring for common medical co-morbidities in ASD
- Expanded medical diagnostics
- Intensive, outcome-driven care for acute conditions
Towards this end, we aim to partner with research and teaching hospitals to establish model clinics which offer “one stop” access to multi-specialty care. Our vision is a coordinated system of care driven by model clinics and implemented through community centers. The following are the key components of our vision:
- The model clinics will help us formulate improved clinical practice guidelines for evidence-based interventions for the core disabilities of autism, as well as treatments for medical co-morbidities.
- We will organize conferences and CME Training workshops to train community physicians like pediatricians, urgent/ER care specialists and internists on clinical practice guidelines as formulated by research and teaching hospitals.
- A patients’ first point of contact is pediatricians and internists, or in the case of acute cate, Urgent Care and ER physicians. We will work with regional hospitals to enable a referral system, so that all community physicians have access to research and teaching hospital based centers of excellence.
- Ongoing care will be delivered in the community with access to expert care; and novel interventions and clinical trials will take place at research hospitals.
We will kick off this process at Synchrony 2019, with two research round tables on Standard of Care and ER Protocols for ASD. Multidisciplinary working groups will meet throughout the year to define and create the deliverables that will help make progress on our vision of better care.
The working groups will emphasize the following aspects of care delivery:
- Support to the family or caregivers and accommodations that need to be in place at the hospital or care center to make the visit comfortable to a person with autism. This includes aspects such as behavioral and sensory support, practice visits to the hospitals on “open house” days, training to staff on how to make the patient comfortable for procedures, and so on.
- Education of staff to proactively consider other treatments and metabolic or other issues the patients may be experiencing, given the comorbidities and their treatments they may be on.
We believe that this will enable continuity of care, and training necessary of the staff at various levels of healthcare delivery, to ensure success to the patient and medical staff.
We see clinicians in the community as critical to realizing our vision, because they are the first point of care for children and adults on the spectrum. That’s why we are offering free attendance for all three days of Synchrony 2019 to clinicians.
And help us spread the word: tell your colleagues!